Posted in Fibromyalgia, Getting social, Social events

Christmas and Cards and Coffee and Cookies and Company! Oh My!

Christmas and Cards and Coffee and Cookies and Company – Who Could Ask For Anymore More? Umm, cupcakes?

Holidays got you stressed? Here some ways to relax https://fibrolondongroup.ca/2019/12/15/12-unusual-ways-to-relieve-your-holiday-stress/

And how about stopping for awhile and having some laughs?

How does an afternoon anyway from all the hustle and bustle sound?

No Christmas songs, no busy stores, no gimmicks, no salespeople, no traffic jams, just cards and company.

That’s happening Monday December 23rd, 2019 1pm-3pm.

Are you worried you’re not playing with a full deck from: pain, worry, anxiety, stress, lack of sleep, etc.?

We understand. We get it. Other people say they get it, but they don’t get it. We live it. Just like you. Join us. Be understood.

Whether you’re exhausted, sharp as a tack (ouch!), just want the company, just want to relax or snack, or snack and relax… So whether you’re a card newbie or a card shark

Fibromyalgia London Group (FLG) Games Afternoon, hosted by the joyful and kind Leanne, is for you! Looking for laughs, refreshments, friends and could-be friends? All that and card games too.

You just never known what delights you’re going to be dealt.

Don’t get lost in the shuffle, pop by Monday December 23rd, 1pm-3pm and did I mention it’s free (kindness is free to, spread it around and receive it with joy) for FLG members and their caregivers/supporters, family, friends, etc.? Not Even. Kidding. Free.

But treats, healthy or unhealthy or maybe both, homemade or store-bought or homegrown, all are welcome! Always.

Contact Jacqueline at: Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com ~ for address and all the deets (ie. 2 hr free parking on the street (and some in the driveway depending on how early you get there), etc. Also, Leanne’s lovely home is near St. Joe’s so there are plenty of bus routes, #15, #6, #90, #13, and many more! Plan your trip http://www.londontransit.ca/plan-a-trip/routes-schedules/ . Also, London now has an income-related bus pass subsidy http://www.london.ca/residents/social-services/discretionary-benefits/Pages/Subsidized-Transit.aspx which can help people with disabilities).

Keep visiting, following and please please please sharing our Website: www.fibrolondongroup.ca – you don’t want to miss a thing.

See you Monday December 23rd 1pm-3pm for cards and relaxation and wishing everyone a safe, happy and healthy (all things considered) holiday season. Merry Christmas and all the best for 2020!!!

Posted in Educational, Fibromyalgia, Getting social

To Knit or Not to Knit: Now That’s A Silly Question!!!

Fibromyalgia London Group (FLG) invites any member, support person, and/or member of the public to participate in a free (what a beautiful word) activity program, therapeutic knitting for those with pain and who want more purpose.

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Led by Janice Sumpton, Knitter Extraordinaire and Knitwear Designer with more than 50 years knitting experience. Living with chronic pain for more than 20 years, Janice found the rhythm and calming repetition of knitting very therapeutic in helping her cope with pain.

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This program is sponsored by our group, the Fibromyalgia London Group and offered in collaboration with the London Public Library (LPL), to support the needs of the FM/CFS/ME community in London, Ontario, Canada and area, as well as anyone who feel they will benefit from being a part of this new community-led program.

Join us Thursday December 12th, 2019 from 1-2:30pm (doors open until 3pm if you want to finish, rest, relax, chat, etc.) in the Boardroom, 3rd Floor (elevators available right across from the staircase), London Public Library – Central Branch in Citi Plaza (formerly the Galleria), Downtown London, Ontario, Canada. 

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FREE program (yes, free!), OPEN TO ALL AGES, but REGISTRATION IS REQUIRED – simply email mailto:fmgroup.london@gmail.com or phone 519-453-3198 to reserve your seat. 

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Anyone of any knitting skill level who is:

Interested in learning how to knit or about therapeutic knitting as a coping method for pain management…

Interested in swapping ideas on how to live everyday with pain and manage this pain…

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Looking to enjoy fun time with others who share similar interests, make friends, etc…

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Looking to give back to community by supporting local charities in need of donated knitwear (COMING SOON! Knit/Crochet for Donation to a Local Charity – We Will Provide Supplies!).

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Please join us (and tell your friends, family, neighbours, co-workers, children, siblings, Grandma, Grandpa, mailperson, doctors, Santa, Mrs. Claus, the elves, the reindeer (I bet they’d like to learn to knit themselves sweaters with their names so we’d all stop getting them confused, on Dasher, on Dancer, on Prancer, Vixen, Comet, Cupid, Daryl Dixon? Well, tell everyone!). 

Don’t Know How To Knit? We’ll Teach You! Learn How Therapeutic Knitting Can Help You Cope with Pain. Come Meet for Fun and Crafty Conversations!

Yarn provided for beginners with Instructional Help (bring own 4mm or 4.5mm needles), or please, bring your own project!

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Free knitting program, free conversation, free 2-hour underground parking in Citi Plaza if you bring your parking ticket for validation at the Front Desk on the Main Floor with your Library Card.

Contact Jacqueline
Fibromyalgia London Group
Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com

~ Website: www.fibrolondongroup.ca

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Find Us @fmlondongroup on Facebook, Twitter and Instagram!

DISCLAIMER STATEMENT: Fibromyalgia London Group [FLG] was created to be a resource of pertinent information, education, and peer-led wellness support to all who attend our programs and events. While we may invite healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our Group meetings and special public events, FLG does not endorse, support or recommend any specific service provider, treatment, product, theory or person.

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To Knit of Not Knit, that is the question? That’s a silly question. To knit and to teach others how to knit, that’s the answer.

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Please join us for our “Goodbye 2019, We’ll Pick up that Stitch in 2020!” Knitting class on Thursday December 12th, 2019 1pm until 2:30pm 3rd floor Boardroom, Central Branch, London Public Library (in Citi Plaza). Free to all!

Happy Holidays! Merry Christmas! ¡Felices Fiestas! Jie Ri Yu Kuai! Laethanta saoire sona! Happy Hanukkah! Joyous Kwanzaa! Yuletide Greetings! Joyeux Noël! Let it snow…somewhere else! Feliz Navidad! Seasons Greetings! Happy New Year Joy! Celebrate! Be merry! Shiawasena kyūjitsu! Boas Festas! Li holide eximnandi! Happy Christmas! Wishing you a latke fun this Hanukkah! Hau’oli Lanui! मेरी क्रिसमस ! Forhe Feiertage! Selamat Hari Raya! Joyeuses Fêtes! Prettige Feestdagen! Buone Feste! Trevlig Helg! Jingle All The Way! Happy Holidays from owl of us! Tis the Season! Warmest greetings! Happy Holidays, Mate! It doesn’t matter how you say it as long as it’s said with kindness.

Posted in Blog posts, Fibromyalgia

Is #Fibromyalgia Still a Four Letter Word?

5 years ago I wrote, “Fibromyalgia is a Four Letter Word” https://yadadarcyyada.com/2013/08/08/fibromyalgia-is-a-four-letter-word/, and now, 5 years later, I’ve updated it and I think, sadly, it’s still true, tell me what you think.

Guest blog by D. Parker, blogger at https://yadadarcyyada.com/ also a Fibromyalgia London Group member and Peer Leader.

This isn’t meant to be whiny (see how that goes…), or a ‘it can be fixed’, or whatever blog post. Just a few thoughts about why people think Fibromyalgia isn’t a real syndrome, that it’s just lazy, unmotivated people and mostly, why I don’t have answers.

Let’s begin at the end…I don’t have all the answers, maybe because I don’t sleep enough. Also, I’m not a million years old. In addition, I’m certainly not a super genius.

Oh, did I mention I don’t sleep enough?

People prefer to think people with disorders/syndromes such as Fibromyalgia are lazy, I dunno, maybe because they don’t want to accept that they could wake up one morning and have something like: Fibromyalgia/Fibromialgia, Chronic Fatigue Syndrome, CRPS, ME, Lyme Disease and/or another chronic illness.

Instead of doing the whole “there-but-for-the-grace-of-God-go-I” thing, too many people just decide that people with these illnesses/syndromes could do better if they only: weren’t so lazy, would exercise more, ate differently, got a better attitude, tried harder, did more, pushed themselves, pushed through, pushed harder…

It’s easier to believe that, I suppose, than believe someone who was full of energy, productive, happy, motivated, etc. can too quickly become a person: full of pain, fatigued (relentless insomnia and pain can tire you out a wee bit),

frustrated, sad (so many sadz),

depressed, anxious,

plagued with memory issues,

exhaustion, confusion…

have massive struggles to function, and so on.

Fibro becomes a joke, a stain, a dirty word because otherwise people would have to accept the reality that people get sick. Humans get sick. They get short-term illnesses, they get injuries that sometimes heal and sometimes, don’t, they get chronic illnesses, they get terminal illnesses, and some live with agony and sometimes, they die.

People often tell someone with cancer they should fight The Cancer, as though that will fix everything. Yes, poking a toothpick at a dragon works so well. Ever thought of how that makes people feel, when they’ve lost a loved one to cancer? Oh, so my loved one just didn’t fight hard enough, well, thanks, that makes me feel so much better.

The same goes for those who’ve lost a loved one to suicide. I’m sure they feel horrible enough without others implying their loved ones gave up, chose to leave, didn’t love them enough to stay, weren’t strong enough, or just didn’t fight hard enough. 

I don’t live in someone’s head so I can’t say if they tried, if they fought, or if they chose, but neither does anyone else, so no one is qualified to make these judgmental statements. No one. Live your own life and let other people live theirs.

Instead of mocking someone with an illness, try having empathy for them. Not sympathy or pity. Compassion. Kindness. I’m sure there are some bizarro individuals would prefer to be ill than well (but they have a whole other illness), but come on, does anyone, anyone at all truly, deep in their heart of hearts seriously believe that’s a majority?  Most people would choose to be well.

Most people would choose to have a full life, a life with a normal amount of pain and fatigue and other symptoms. Just like most people would choose to beat cancer. Hell, most people would choose not to get cancer at all. Most people would choose not to have a mental illness. If there was a choice involved.

People are slowly coming around to the belief that people who lead a homosexual lifestyle didn’t choose to be that way, it’s the way they are. Why is everyone is fixated on who loves whom…what the world needs now is more love, more fun, more kindness, more compassion, more empathy, more joy. https://yadadarcyyada.com/2015/07/03/how-to-be-good-to-one-another/ It has taken a long time and there are still haters (haters gonna hate) out there, but I bet many people are happy to see a light at the end of that rainbow.

I wonder when that day will come for people with chronic illnesses like Fibromyalgia, or people with mental health issues, or people with Autism, etc.  I wonder if or when people will see them, really see them, for who they really are:  your Mom, your child, your sister, your friend, your co-worker, your Dad, your teacher, your brother, your minister, your neighbour – just people.

Don’t judge people.

Have a little empathy.

Those people might be: interesting, fun, brilliant, a hope for the future, a good friend, or something more than a friend, someone to talk with, walk with, someone who inspires you, or but most of all, who gets you, but you’ll never know if you make judgements, make assumptions.

Don’t miss out!

Copyright D. Parker (aka Donna Parker/yadadarcyyada) 2013-2019. All opinions expressed are that of the author and do not necessarily reflect those of Fibromyalgia London Group (FLG).


All members of Fibromyalgia London Group, please send me blog posts, book reviews (relevant to subject matter at hand), recipes, quotes, memes, gifs, lyrics, real life experiences, etc. so we can publish them in our blog. Be part of helping us help others. You can request first name only, full name, pseudonym, etc. for publishing. Send info and deets to: iwanttobelieve@rogers.com

Posted in Fibromyalgia, Sharing Circle

Go Ahead, Make My Day…

Saturday December 7th, 2019 1pm- 2:30pm it’s our epic “Goodbye 2019” (Wishing everyone a Merry Christmas, Happy Holidays and a safe and Happy New Year’s Eve – we’ll be sharing again in 2020!) North/East London, Ontario, Canada Sharing Circle and separate Caregiver Support Group – Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) on Saturday December 7th, 2019 1pm-2:30pm (doors open early and Peer Leaders are there to: chat, answer questions, help with resources, etc.).

You’re not alone, chronic pain and other symptoms make you feel like you’re alone (it lies!!!). Need to share? Want to listen? Want to be heard? By people who understand, then please join our caring Fibromyalgia/Fibromialgia, CFS, CRPS, ME, and all chronic pain Sharing Circle session with a separate sharing circle/support group for caregivers/supporters. etc. of those with Fibromylagia and other chronic pain – (when we say sharing, it’s voluntary, but you never know what you might learn) and you’ll get all this and more!

We’re here for each other!

So please, join us at the monthly Sharing Circle Session and Caregiver Support Group Meetup at the Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) in London, Ontario, Canada on Saturday December 7th, 2019 1pm-2:30pm (peer leaders will be there by 12:30pm, come early, talk, connect, share, care, chat, etc.) for the Fibromyalgia and other chronic pain London Group Sharing Circle session and the separate Caregivers Sharing Circle Session for those who love and care for people with chronic pain.

To register contact, call Jacqueline at:
519-453-3198 or email:

fmgroup.london@gmail.com

Or if you and your loved one/caregiver/supporter/spouse/partner/friend/sibling/parent, etc. feel up to it that day or forget (Fibrofog never, ever, ever makes us forget anything…what was I saying?) and want to come anyway, all are welcome. We understand. Really.

What is $20 per year (yes, I said $20 per year which is like $1.66 a month and like a nickel a day, what do you get for a nickel?) and gives you PLUS a listed supporter/caregiver/loved one/spouse/friend/sibling/parent/partner, etc. unlimited access (yes, you read that correctly, unlimited, no restrictions, no caps, no limits ) to any OR ALL Fibromyalgia London Group (FLG) activities, Sharing Circles, special events, speakers, resources, get-togethers, websites, social media, etc.??? You may have already guessed, a membership/donation to FLG (Fibromyalgia London Group).

Yes, only $20/year. Still not sure? Come and visit, a $5 donation/person will let you see what we have to offer. Fill out an application and become a part of this volunteer-driven, self-help group today!

You can also find us, @fmlondongroup on: Facebook, Instagram, Twitter https://twitter.com/fmlondongroup

And https://www.facebook.com/fmlondongroup/ or look up @fmlondongroup

The holidays can be tough on people with Fibromyalgia, CFS, ME, CRPS, any chronic pain, so if you’re struggling, again, you’re not alone, feel free to contact us via: Twitter, Facebook, Instagram, this website, call, email, we’re here!

Thank you. Hope to see you and that someone special who’s smart enough to love and care for someone with Fibromyalgia or other chronic pain condition at the Sharing Circle Session and Caregiver Support Group Meetup at the Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) in London, Ontario, Canada – that’s this Saturday December 7th, 2019 1pm-2:30pm (peer leaders will be there by 12:30pm, come early, talk, connect, share, care, chat, etc.). And remember, despite what Fibromyalgia and/or other chronic pain makes you think, you are not alone.

Disclaimer: The Fibromyalgia London Group (FLG) was created to be a resource of pertinent information to those who attend our meetings, sharing circle sessions, and special events. While we invite medical and healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our meetings and special events, FLG does not endorse, support or recommend any specific treatment, product, therapy or person. The opinions, beliefs and viewpoints expressed by participants and group members do not necessarily reflect the opinions, beliefs, views, or official policies of the FLG.

Posted in Educational, Fibromyalgia

Knit Happens!

Fibromyalgia London Group (FLG) invites any member, support person, or member of the public to participate in a new activity program, therapeutic knitting for those with pain and who want more purpose.

Led by Janice Sumpton, Knitter Extraordinaire and Knitwear Designer with more than 50 years knitting experience. Living with chronic pain for more than 20 years, Janice found the rhythm and calming repetition of knitting very therapeutic in helping her cope with pain.

This program is sponsored by our Group, the Fibromyalgia London Group and offered in collaboration with the London Public Library (LPL), to support the needs of the FM/CFS/ME community in London, Ontario, Canada and area, as well as anyone who feel they will benefit from being a part of this new community-led program.

Join us Thursday November 14th, 2019 from 1-3pm in the Boardroom, 3rd Floor, London Public Library-Central Branch in Citi Plaza (formerly the Galleria), Downtown London, Ontario, Canada. 

This is a FREE program, OPEN TO ALL AGES, but REGISTRATION IS REQUIRED – simply email mailto:fmgroup.london@gmail.com or phone 519-453-3198 to reserve your seat. 

Anyone of any knitting skill level who is:

Interested in learning how to knit or about therapeutic knitting as a coping method for pain management…

Interested in swapping ideas on how to live everyday with pain and manage this pain…

Looking to enjoy fun time with others who share similar interests, make friends, etc…

Looking to give back to community by supporting local charities in need of donated knitwear (COMING SOON! Knit/Crochet for Donation to a Local Charity – We Will Provide Supplies!).

Please join us (and tell your friends, family, neighbours, co-workers, children, siblings, Grandma, Grandpa, mailperson, doctors, well, tell everyone)! 

Don’t Know How To Knit? We’ll Teach You! Learn How Therapeutic Knitting Can Help You Cope with Pain. Come Meet for Fun and Crafty Conversations!

Yarn provided for beginners with Instructional Help (bring own 4mm or 4.5mm needles), or please, bring your own project!

In case you didn’t know, you can get 2-hours free underground parking in Citi Plaza if you bring your parking ticket for validation at the Front Desk on the Main Floor.  You will need your Library Card with you.

Contact Jacqueline
Fibromyalgia London Group
Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com

~ Website: www.fibrolondongroup.ca

Find Us @fmlondongroup on Facebook, Twitter and Instagram!

DISCLAIMER STATEMENT: Fibromyalgia London Group [FLG] was created to be a resource of pertinent information, education, and peer-led wellness support to all who attend our programs and events.  While we may invite healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our Group meetings and special public events, FLG does not endorse, support or recommend any specific service provider, treatment, product, theory or person.

Spread the #knittinglove because as we all know, Knit Happens!