Posted in Blog posts, Fibromyalgia

Is #Fibromyalgia Still a Four Letter Word?

5 years ago I wrote, “Fibromyalgia is a Four Letter Word” https://yadadarcyyada.com/2013/08/08/fibromyalgia-is-a-four-letter-word/, and now, 5 years later, I’ve updated it and I think, sadly, it’s still true, tell me what you think.

Guest blog by D. Parker, blogger at https://yadadarcyyada.com/ also a Fibromyalgia London Group member and Peer Leader.

This isn’t meant to be whiny (see how that goes…), or a ‘it can be fixed’, or whatever blog post. Just a few thoughts about why people think Fibromyalgia isn’t a real syndrome, that it’s just lazy, unmotivated people and mostly, why I don’t have answers.

Let’s begin at the end…I don’t have all the answers, maybe because I don’t sleep enough. Also, I’m not a million years old. In addition, I’m certainly not a super genius.

Oh, did I mention I don’t sleep enough?

People prefer to think people with disorders/syndromes such as Fibromyalgia are lazy, I dunno, maybe because they don’t want to accept that they could wake up one morning and have something like: Fibromyalgia/Fibromialgia, Chronic Fatigue Syndrome, CRPS, ME, Lyme Disease and/or another chronic illness.

Instead of doing the whole “there-but-for-the-grace-of-God-go-I” thing, too many people just decide that people with these illnesses/syndromes could do better if they only: weren’t so lazy, would exercise more, ate differently, got a better attitude, tried harder, did more, pushed themselves, pushed through, pushed harder…

It’s easier to believe that, I suppose, than believe someone who was full of energy, productive, happy, motivated, etc. can too quickly become a person: full of pain, fatigued (relentless insomnia and pain can tire you out a wee bit),

frustrated, sad (so many sadz),

depressed, anxious,

plagued with memory issues,

exhaustion, confusion…

have massive struggles to function, and so on.

Fibro becomes a joke, a stain, a dirty word because otherwise people would have to accept the reality that people get sick. Humans get sick. They get short-term illnesses, they get injuries that sometimes heal and sometimes, don’t, they get chronic illnesses, they get terminal illnesses, and some live with agony and sometimes, they die.

People often tell someone with cancer they should fight The Cancer, as though that will fix everything. Yes, poking a toothpick at a dragon works so well. Ever thought of how that makes people feel, when they’ve lost a loved one to cancer? Oh, so my loved one just didn’t fight hard enough, well, thanks, that makes me feel so much better.

The same goes for those who’ve lost a loved one to suicide. I’m sure they feel horrible enough without others implying their loved ones gave up, chose to leave, didn’t love them enough to stay, weren’t strong enough, or just didn’t fight hard enough. 

I don’t live in someone’s head so I can’t say if they tried, if they fought, or if they chose, but neither does anyone else, so no one is qualified to make these judgmental statements. No one. Live your own life and let other people live theirs.

Instead of mocking someone with an illness, try having empathy for them. Not sympathy or pity. Compassion. Kindness. I’m sure there are some bizarro individuals would prefer to be ill than well (but they have a whole other illness), but come on, does anyone, anyone at all truly, deep in their heart of hearts seriously believe that’s a majority?  Most people would choose to be well.

Most people would choose to have a full life, a life with a normal amount of pain and fatigue and other symptoms. Just like most people would choose to beat cancer. Hell, most people would choose not to get cancer at all. Most people would choose not to have a mental illness. If there was a choice involved.

People are slowly coming around to the belief that people who lead a homosexual lifestyle didn’t choose to be that way, it’s the way they are. Why is everyone is fixated on who loves whom…what the world needs now is more love, more fun, more kindness, more compassion, more empathy, more joy. https://yadadarcyyada.com/2015/07/03/how-to-be-good-to-one-another/ It has taken a long time and there are still haters (haters gonna hate) out there, but I bet many people are happy to see a light at the end of that rainbow.

I wonder when that day will come for people with chronic illnesses like Fibromyalgia, or people with mental health issues, or people with Autism, etc.  I wonder if or when people will see them, really see them, for who they really are:  your Mom, your child, your sister, your friend, your co-worker, your Dad, your teacher, your brother, your minister, your neighbour – just people.

Don’t judge people.

Have a little empathy.

Those people might be: interesting, fun, brilliant, a hope for the future, a good friend, or something more than a friend, someone to talk with, walk with, someone who inspires you, or but most of all, who gets you, but you’ll never know if you make judgements, make assumptions.

Don’t miss out!

Copyright D. Parker (aka Donna Parker/yadadarcyyada) 2013-2019. All opinions expressed are that of the author and do not necessarily reflect those of Fibromyalgia London Group (FLG).


All members of Fibromyalgia London Group, please send me blog posts, book reviews (relevant to subject matter at hand), recipes, quotes, memes, gifs, lyrics, real life experiences, etc. so we can publish them in our blog. Be part of helping us help others. You can request first name only, full name, pseudonym, etc. for publishing. Send info and deets to: iwanttobelieve@rogers.com

Posted in Fibromyalgia, Getting social, Social events

Don’t Get Lost in the Shuffle!!!

How about an afternoon of cards and company? That’s happening Monday December 9th, 2019.

Don’t Get Lost in the Shuffle!

Looking for a bunch of laughs, friends and could-be friends, refreshments? Who wants all that and card games too? You do?

Then deal with your boredom by joining us at the monthly Fibromyalgia London Group (FLG) Games Afternoon hosted by the delightful Leanne. Whether you’re a card shark or just like to chat and laugh and snack, there’s something for everyone.

Don’t get lost in the shuffle, pop by Monday December 9th, 1-3pm and did I mention it’s free (that’s a real word) for FLG members and their caregivers/supporters, family, friends, etc.? I kid you not. But treats, snacks, chocolate, cookies, coffee, well, any yummies are always, always welcome!!! Always.

Contact Jacqueline at: Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com ~ for address and all the deets (ie. 2 hr free parking on the street, etc. and it’s near St. Joe’s so there are plenty of bus routes, #15, #6, #90, and more! Plan your trip http://www.londontransit.ca/plan-a-trip/routes-schedules/ . Also, City of London now has a bus pass subsidy http://www.london.ca/residents/social-services/discretionary-benefits/Pages/Subsidized-Transit.aspx which may help people with disabilities).

Keep visiting, following, sharing our Website: www.fibrolondongroup.ca – you don’t want to miss a thing.

Posted in Fibromyalgia, Uncategorized

Chronic Suckage

“Chronic Suckage” by Guest Blogger, D. Parker https://yadadarcyyada.com who is also a member of Fibromyalgia London Group and a Peer Leader.

Lazy. Crazy. Whiner. Hypochondriac. Attention-seeking. All in your head.   “Fibromyalgia is just another word for lazy.” yadadarcyyada.com/2013/08/31/fibromylagia-is-just-another-word-for-lazy/ 

And the classic, “But you don’t look sick”. Feel free to add more. I think I’ve heard them all…but you never know.

Yup, I got 99 Problems and Fibromyalgia (Fibromialgia) is all of them…or at least it makes any problem much much much much worse.

I won’t bore you with all the symptoms:

  • Extreme, endless fatigue (I’ve never heard, “everyone gets tired”…sigh).

  • Extreme, endless all-over-body-pain 24/7/365 (“everyone has pain, especially as they get older” – how do you presume to know my pain or anyone else’s pain but yours?).

  • Dry eyes/mouth.

  • Hair loss.

  • IBS (Oh joy, love nothing more than talking about my bowels to: doctors, family, friends, strangers, interns, readers…”What did you want to be when you grow up?” “Constipated.”).

  • Dizziness.

  • Clumsiness.

  • Nausea.

  • Depression (tough not to be depressed by all this).

  • Sleep issues (screw off Alpha waves, no one wants you here).

  • Mood disorders (maybe my many, many moods are just as ordered as they should be).

  • Headaches/migraines.

  • Restless leg syndrome.

  • Anxiety (pick a kind, any kind).

  • Tender points (misnomer, not tender, excruciating, but trigger points make sense).

  • Fibrofog (what was I saying?).

  • Memory and learning problems, like, aah, like, well, there’s Fibrofog (what was I saying?).

  • Scattered thoughts (dust in the wind, all my thoughts are dust in the wind).

  • Numbness.

  • Tingling (not the good kind).

  • Shakiness (not the good kind).

  • TMJ (Temporomandibular Joint Syndrome).

  • Painful and frequent urination.

  • You may notice a pattern here, #Pain!

  • Sharp pain, stabbing pain, dull aching pain, burning pain, throbbing pain (Beavis and Butthead laugh for 5 minutes now about “throbbing”).

  • Extreme sensitivity to: light, noise, sounds, smells, temperatures, humidity, dryness, changes in the weather (especially extreme heat or cold, fun in Canada, eh).

  • Also, to tastes, textures (Princess and the Pea was written about someone with Fibromyalia, for sure).

  • Stiffness (not the fun kind).;

  • Especially morning stiffness (not the fun kind).

  • Let’s not forget Allodynia.

  • Itching (like, bugs-under-your-skin-when-jonesing-kind-of-itching, er, for chocolate, my drug of choice).

  • Waking up feeling like you’ve been run over by a truck or attacked by a Terminator or zombie (brains?) – We are The Walking Dead.

  • And don’t even get me started on surviving the Holidaze, er, holidays – Christmas, New Year’s Eve, birthdays, Easter, Thanksgiving, Black Friday (it’s counted as a holiday now, right?), actually I can do CyberMonday, and they’re lined up to take me out for Valentine’s Day

I could go on and on (really), but you get the point.

It sucks.

Chronic suckage.

What can anyone do to try to help chronic suckage? 
  • Pills/medications (anti this, anti that, pro this, pro that, SSRIs, SNRIs, NSAIDs, PB&J – checking if you were still paying attention, lotions, notions, rubs, gels – not the fun kind – vitamins, supplements, opioids, snake oil, gargoyle oil, and on and on).

  • Exercise.

  • Natural remedies.

  • Injections.

  • Yoga.

  • Meditation.

  • Deep breathing (keep breathing).

  • Tai Chi (saved my life).

  • Change of diet (I do FODMAP, look it up, you’ll hate it).

  • Massage (no happy endings).

  • Physical therapy.

  • Rest/relaxation/Self-Care.

  • CBT, CBD, CBC, CBA, COD…

  • Trials.

  • Errors.

It’s all just fleeting moments of feeling almost human.

And if all wasn’t bad enough, many people assume this invisible disability is and let’s see if I have this right, a conspiracy wherein the medical profession has effectively implemented a fake syndrome just to cater to lazy people (wasn’t that nice of them?). Perfectly reasonable, it’s not as if doctors have anything better to do. Or have reputations and licenses to protect. Or have ethics. What exactly would their motivation be? Why make up an illness, aren’t there already enough? Cancer alone should keep them hopping.

There are many health issues that can not be found through standardized testing, for example: Multiple Sclerosis, ALS, Cerebral Palsy, Parkinson’s, Autism, Lupus, ADD/ADHD, wheat or gluten ‘sensitivity’, acute back pain, as well as many mental health issues. So they don’t suffer, don’t feel – it’s all some magical conspiracy…

People like to mock. I get that. It’s become a past-time, even a job for some people, especially in the internet age. I also get those same people would want/expect doctors and people to believe them if they were ill, even if there was no standardized testing for their illness.

To the best of my knowledge, there’s no standardized testing for ignorance or stupidity yet either, but I’d buy stocks for that booming business.

I didn’t ask to be ill. Given the choice I’d be “normal”. I certainly didn’t ask to be mocked and harassed because I’m ill. Even if it was just ‘in my head’, shouldn’t anyone with a health issue be treated with dignity and respect? Maybe we need a standardized test for intolerance.

So how do I cope with ongoing agonizing pain, debilitating fatigue and all the other heaping piles of steaming sh*t that comes with Fibromyalgia aka chronic suckage? If you’re a reader of my blog you know, I think laughter is the best medicine. Laughing even if it hurts sometimes still makes me feel better. I go to a happy place like Psych or George Carlin, Seinfeld, Friends, The Office and more. Tons of laughter a day doesn’t keep the doctor away, but it gives me some quality of life.

For example, this was one of my Tweets, “When I see a thong in a store all I think is, how would I explain to #EMTs all my multiple injuries were caused by just trying on a thong. Huh. #ThatsHot #thongs“. @yadadarcyyada 

I love to share the laughter. If I can make someone smile, laugh, giggle, chortle, spew liquid from their nose, then hey, I feel better. Treatments, medications, family, friends and finding a community that gets you, that understands when you have to cancel plans (again)…

Or you can’t remember, ummm, can’t remember, er, huh…and the only good thing you can say about your day is you’re “above ground”, well, anyway.

Glad there are people around who understand, including but not limited to: the-words-are-not-enough-to-describe-how-wonderful-they-are-Fibromyalgia London Group (FLG) #FibromyalgiaLondonGroup #FLG, also for those with CFS, ME, chronic pain, etc. I’ve even tried to knit (What?!? Please note the word, “tried”).

Reunited with a fantastic friend from college (we’d lost touch when the dinosaurs died), and get this, we started going to the same Fibro group on the same day, from different cities. I don’t know what they call that, fate, destiny, providence, kismet, but I call it cool and lucky.

Finding ways to help myself by helping others.

I am so sure you can see my chocolate-covered fingerprints all over the group’s blog, fibrolondongroup.ca

And hey, we’re also on Twitter, Facebook, Instagram @fmlondongroup

The thing is, people are just people – no matter how rich or poor; sick (this is an equal opportunity destroyer) or well; all sizes, shapes and shades; known or unknown – you don’t know what you’re missing if you don’t give people a chance. Some will let you down, disappoint, hurt your brain, your heart, your body, but they’re oddly beneficial, they help us appreciate the good ones even more.

Get out there, in person, online, by phone, text, email, do stuff, I don’t know, play cards, smile, knit, donate (give what you can, including your time and talents), bowl, cuddle, talk, sign, sing, walk, dance, embrace your crapathy https://yadadarcyyada.com/2016/05/25/crapathy/

swim, skate, scuba (gate?), especially smile at children, jog, blog, snog (probably not at the same time unless you’re uber talented), ignore, don’t keep score it’s a bore, read, write, compose, doodle, paint, play, bike, hike, “Like”, bake (me a cake? https://yadadarcyyada.com/2016/09/16/you-had-me-at-cake/),

listen, learn, love, add to the world, be part of the solution, go out with friends, care, share, spend time with family, get to know people, smile some more (and more and more and more)!!!

Be kind, be thoughtful, be compassionate https://yadadarcyyada.com/2015/02/20/compassion-never-goes-out-of-style/

Consider others, let your mind soar. I can’t say you won’t ever be sorry, some folks are baffling, but on a whole, you’ll be better for it (and they will be too).

Not asking anyone to feel sorry for me (although compassion and empathy are always welcome), just a reminder that everyone has problems, 99 or less, 99 or more, just because we can’t see them doesn’t mean they aren’t there…so don’t be one of those problems.

Originally published: https://yadadarcyyada.com/2019/11/22/99-problems-and-fibromyalgia-is-all-of-them/

Copyright D. Parker (aka Donna Parker/yadadarcyyada) 2019.

Posted in Fibromyalgia, Sharing Circle

Go Ahead, Make My Day…

Saturday December 7th, 2019 1pm- 2:30pm it’s our epic “Goodbye 2019” (Wishing everyone a Merry Christmas, Happy Holidays and a safe and Happy New Year’s Eve – we’ll be sharing again in 2020!) North/East London, Ontario, Canada Sharing Circle and separate Caregiver Support Group – Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) on Saturday December 7th, 2019 1pm-2:30pm (doors open early and Peer Leaders are there to: chat, answer questions, help with resources, etc.).

You’re not alone, chronic pain and other symptoms make you feel like you’re alone (it lies!!!). Need to share? Want to listen? Want to be heard? By people who understand, then please join our caring Fibromyalgia/Fibromialgia, CFS, CRPS, ME, and all chronic pain Sharing Circle session with a separate sharing circle/support group for caregivers/supporters. etc. of those with Fibromylagia and other chronic pain – (when we say sharing, it’s voluntary, but you never know what you might learn) and you’ll get all this and more!

We’re here for each other!

So please, join us at the monthly Sharing Circle Session and Caregiver Support Group Meetup at the Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) in London, Ontario, Canada on Saturday December 7th, 2019 1pm-2:30pm (peer leaders will be there by 12:30pm, come early, talk, connect, share, care, chat, etc.) for the Fibromyalgia and other chronic pain London Group Sharing Circle session and the separate Caregivers Sharing Circle Session for those who love and care for people with chronic pain.

To register contact, call Jacqueline at:
519-453-3198 or email:

fmgroup.london@gmail.com

Or if you and your loved one/caregiver/supporter/spouse/partner/friend/sibling/parent, etc. feel up to it that day or forget (Fibrofog never, ever, ever makes us forget anything…what was I saying?) and want to come anyway, all are welcome. We understand. Really.

What is $20 per year (yes, I said $20 per year which is like $1.66 a month and like a nickel a day, what do you get for a nickel?) and gives you PLUS a listed supporter/caregiver/loved one/spouse/friend/sibling/parent/partner, etc. unlimited access (yes, you read that correctly, unlimited, no restrictions, no caps, no limits ) to any OR ALL Fibromyalgia London Group (FLG) activities, Sharing Circles, special events, speakers, resources, get-togethers, websites, social media, etc.??? You may have already guessed, a membership/donation to FLG (Fibromyalgia London Group).

Yes, only $20/year. Still not sure? Come and visit, a $5 donation/person will let you see what we have to offer. Fill out an application and become a part of this volunteer-driven, self-help group today!

You can also find us, @fmlondongroup on: Facebook, Instagram, Twitter https://twitter.com/fmlondongroup

And https://www.facebook.com/fmlondongroup/ or look up @fmlondongroup

The holidays can be tough on people with Fibromyalgia, CFS, ME, CRPS, any chronic pain, so if you’re struggling, again, you’re not alone, feel free to contact us via: Twitter, Facebook, Instagram, this website, call, email, we’re here!

Thank you. Hope to see you and that someone special who’s smart enough to love and care for someone with Fibromyalgia or other chronic pain condition at the Sharing Circle Session and Caregiver Support Group Meetup at the Stronach Recreation Centre, 1221 Sandford St. N5V 2J8 (please note change of venue) in London, Ontario, Canada – that’s this Saturday December 7th, 2019 1pm-2:30pm (peer leaders will be there by 12:30pm, come early, talk, connect, share, care, chat, etc.). And remember, despite what Fibromyalgia and/or other chronic pain makes you think, you are not alone.

Disclaimer: The Fibromyalgia London Group (FLG) was created to be a resource of pertinent information to those who attend our meetings, sharing circle sessions, and special events. While we invite medical and healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our meetings and special events, FLG does not endorse, support or recommend any specific treatment, product, therapy or person. The opinions, beliefs and viewpoints expressed by participants and group members do not necessarily reflect the opinions, beliefs, views, or official policies of the FLG.

Posted in Educational, Fibromyalgia, Guest Speaker

Ontario Disability Benefits (ODSP): What You Need to Know

Fibromyalgia London Group is Proud to Present:

Ontario’s Disability Benefits Program (ODSP): What you need to know. Whether you’re starting the application process – ODSP, CPP-D, etc. – or going through the journey of denial and acceptance of your application, tribunals etc., make a point of coming to our information workshop.

Ontario’s Disability Benefits: From Application to Appeal presented by Rob Spencer, London Employment Help Centre

And then…

Saving While Living on Disability or Social Assistance Benefits presented by Robert Leyland, Family Services Thames Valley

Please join us Tuesday, December 3, 2019 6:30-8:30pm (Doors Open at 6:00pm) Beacock Branch Library, 1280 Huron Street, London, Ontario, Canada.

This program is open to the public, free (registration required). Hosted by the Fibromyalgia London Group with Community Partners: London Employment Help Centre, Family Services Thames Valley and the London Public Library. There’s free parking available and on several LTC bus routes (#10, #15, #27 – check http://www.londontransit.ca/ to plan your trip).

Register several ways:

Online: https://ontarios-disabiliity-benefits.eventbrite.com

Email: fmgroup.london@gmail.com or

Call: 519-453-3198

DISCLAIMER STATEMENT: Fibromyalgia London Group [FLG] was created to be a resource of pertinent information, education, and peer-led wellness support to all who attend our programs and events. While we may invite healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our Group meetings and special public events, FLG does not endorse, support or recommend any specific service provider, treatment, product, theory or person.

Hope to see you there.

Posted in Uncategorized

Knitting Keeps Us From Unraveling

Fibromyalgia London Group (FLG) invites any member, support person, or member of the public to participate in this exciting new activity program, therapeutic knitting for those with pain and who want more purpose.

Led by Janice Sumpton, Knitter Extraordinaire and Knitwear Designer with decades of knitting experience. Living with chronic pain for more than 20 years, Janice found the rhythm and calming repetition of knitting very therapeutic in helping her cope with pain.

This program is sponsored by our Group, the Fibromyalgia London Group and offered in collaboration with the London Public Library (LPL), to support the needs of the FM/CFS/ME community in London, Ontario, Canada and area, as well as anyone who feel they will benefit from being a part of this new community-led program.

Join us Thursday November 28th, 2019 from 1-2:30pm (doors open until 3pm if you wish to stay and continue) in the Boardroom, 3rd Floor, London Public Library – Central Branch in Citi Plaza (formerly the Galleria), Downtown London, Ontario, Canada. 

This is a FREE (that’s a real word, look it up) program, OPEN TO ALL AGES and all skills, but please REGISTER – simply email mailto:fmgroup.london@gmail.com or phone 519-453-3198 to reserve your seat (if you forget, which those of us with Fibrofog never, ever, ever do or you feel up to it, please join us anyway, drop by and spin a yarn). 

Anyone of any knitting skill level who is:

Interested in learning how to knit or about therapeutic knitting as a coping method for pain management…

Interested in swapping ideas on how to live everyday with pain and manage pain…

Looking to enjoy fun time with others who share similar interests, make friends, etc…

Looking to give back to community by supporting local charities in need of donated knitwear (COMING SOON! Knit/Crochet for Donation to a Local Charity – We Will Provide Supplies!).

Please join us (and tell your friends, family, neighbours, co-workers, children, siblings, Grandma, Grandpa, mailperson, elves, doctors, tell Santa, well, tell everyone)! 

Don’t Know How To Knit? We’ll Teach You! Learn How Therapeutic Knitting Can Help You Cope with Pain. Come Meet for Fun and Crafty Conversations!

Yarn provided for beginners with Instructional Help (bring own 4mm or 4.5mm needles), or please, bring your own project!

In case you didn’t know, you can get 2-hours free underground parking in Citi Plaza if you bring your parking ticket for validation at the Front Desk on the Main Floor.  You will need your Library Card with you.

Contact Jacqueline
Fibromyalgia London Group
Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com

~ Website: www.fibrolondongroup.ca

Please, join us: @fmlondongroup on Facebook, Twitter and Instagram!

DISCLAIMER STATEMENT: Fibromyalgia London Group [FLG] was created to be a resource of pertinent information, education, and peer-led wellness support to all who attend our programs and events.  While we may invite healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our Group meetings and special public events, FLG does not endorse, support or recommend any specific service provider, treatment, product, theory or person.

Spread the #knittinglove because as we all know, Knitting helps us from unraveling!

So please join us this Thursday November 28th, 2019 at the London Public Library for the Fibromyalgia/Chronic Pain Knitting group! Only two more chances until Christmas (Thursday November 28th and Thursday December 12th, 2019 1-2:30pm) at Central Branch, London Public Library then we’ll pick up our stitch in January 2020!

Posted in Fibromyalgia, Sharing Circle

What Happens in the Sharing Circle Stays in the Sharing Circle

Fibromyalgia London Group (FLG) Monthly Sharing Circle (morning); 11:00am until 12:30pm (peer leaders and some members arrive at 10:30am, so join us for information, resources, just to talk, for the community and company – as this is close to Christmas/holiday season but not too close some are bringing homemade and/or store-bought baking to share with members – it doesn’t have to be gluten-free, etc. but please clearly mark if it contains: gluten, dairy, nuts, eggs, etc. Thank you.) at Earl Nichols Community Centre, 799 Homeview Road (near Southdale and Wharncliffe) London, Ontario, Canada

Please register but if you forget (we never do that with Fibrofog!) or decide to join us last minute, all are welcome…please drop in, we’d love to have you there!
Fibromyalgia London Group
Email: fmgroup.london@gmail.com ~ Website: www.fibrolondongroup.ca Tel: 519-453-3198 ~

Also, please find us (FLG) @fmlondongroup on Facebook, Twitter and Instagram!

Membership to Fibromyalgia (also CFS, ME and other chronic conditions) London Group is only $20 per year (not kidding) and that gives you admission for yourself and one supporter (family, friend, spouse, partner, loved one, caregiver, etc.) to any or all of our programs, including but not limited to: Sharing Circle (we talk, you talk but only when you feel comfortable; we share resources, information, etc. and what’s happens in the Sharing Circle stays in the Sharing Circle); Special Events which include speakers, presentations, therapeutic knitting with pain and purpose, charitable work, stone painting, social events and so so much more! Not sure you want to join? That’s ok too. Come visit us, $5 donation per person and if you decide to join then we’ll take that into account.

Disclaimer: The Fibromyalgia London Group (FLG) was created to be a resource of pertinent information to those who attend our meetings, sharing circle sessions, and special events. While we invite medical and healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our meetings and special events, FLG does not endorse, support or recommend any specific treatment, product, therapy or person. The opinions, beliefs and viewpoints expressed by participants and group members do not necessarily reflect the opinions, beliefs, views, or official policies of the FLG.

“Share your knowledge. It is a way to achieve immortality.”
― Dalai Lama

Fibromyalgia London Group (FLG) Monthly Sharing Circle (morning); 11:00am until 12:30pm (peer leaders and some members arrive at 10:30am, so join us for information, resources, just to talk, for the community and company – as this is close to Christmas/holiday season but not too close some are bringing homemade and/or store-bought baking to share with members – it doesn’t have to be gluten-free, etc. but please clearly mark if it contains: gluten, dairy, nuts, eggs, etc. Thank you. ) at Earl Nichols Community Centre, 799 Homeview Road (near Southdale and Wharncliffe) London, Ontario, Canada

Posted in Fibromyalgia, Uncategorized

Hope You’ll Follow Suit and Join Us Monday November 11th, 2019 for Cards and More!

Please join us Monday November 11th, 2019 1-3pm for: Cards! Laughter (still the best medicine)! Friends! Friends you have yet to make (you just haven’t met them yet)! Company! Sharing! Caring! Sound good? Then join us for yet another upcoming event! Monday November 11th, 2019, that’s 1pm until 3pm! Love to play cards? Want to make new friends and spend time with others who understand Fibromyalgia/CFS/Me? Then have we got a day for you? Play cards, talk, enjoy! Contact Jacqueline at: fmgrouplondon@gmail.com or 519-453-3198 for the details (time, place, etc.). Special thanks for the amazing Leanne for being the hostess with the mostess!

Posted in Educational, Fibromyalgia

Knit Happens!

Fibromyalgia London Group (FLG) invites any member, support person, or member of the public to participate in a new activity program, therapeutic knitting for those with pain and who want more purpose.

Led by Janice Sumpton, Knitter Extraordinaire and Knitwear Designer with more than 50 years knitting experience. Living with chronic pain for more than 20 years, Janice found the rhythm and calming repetition of knitting very therapeutic in helping her cope with pain.

This program is sponsored by our Group, the Fibromyalgia London Group and offered in collaboration with the London Public Library (LPL), to support the needs of the FM/CFS/ME community in London, Ontario, Canada and area, as well as anyone who feel they will benefit from being a part of this new community-led program.

Join us Thursday November 14th, 2019 from 1-3pm in the Boardroom, 3rd Floor, London Public Library-Central Branch in Citi Plaza (formerly the Galleria), Downtown London, Ontario, Canada. 

This is a FREE program, OPEN TO ALL AGES, but REGISTRATION IS REQUIRED – simply email mailto:fmgroup.london@gmail.com or phone 519-453-3198 to reserve your seat. 

Anyone of any knitting skill level who is:

Interested in learning how to knit or about therapeutic knitting as a coping method for pain management…

Interested in swapping ideas on how to live everyday with pain and manage this pain…

Looking to enjoy fun time with others who share similar interests, make friends, etc…

Looking to give back to community by supporting local charities in need of donated knitwear (COMING SOON! Knit/Crochet for Donation to a Local Charity – We Will Provide Supplies!).

Please join us (and tell your friends, family, neighbours, co-workers, children, siblings, Grandma, Grandpa, mailperson, doctors, well, tell everyone)! 

Don’t Know How To Knit? We’ll Teach You! Learn How Therapeutic Knitting Can Help You Cope with Pain. Come Meet for Fun and Crafty Conversations!

Yarn provided for beginners with Instructional Help (bring own 4mm or 4.5mm needles), or please, bring your own project!

In case you didn’t know, you can get 2-hours free underground parking in Citi Plaza if you bring your parking ticket for validation at the Front Desk on the Main Floor.  You will need your Library Card with you.

Contact Jacqueline
Fibromyalgia London Group
Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com

~ Website: www.fibrolondongroup.ca

Find Us @fmlondongroup on Facebook, Twitter and Instagram!

DISCLAIMER STATEMENT: Fibromyalgia London Group [FLG] was created to be a resource of pertinent information, education, and peer-led wellness support to all who attend our programs and events.  While we may invite healthcare professionals, advocates, practitioners or representatives from community organizations to speak at our Group meetings and special public events, FLG does not endorse, support or recommend any specific service provider, treatment, product, theory or person.

Spread the #knittinglove because as we all know, Knit Happens!