Posted in Fibromyalgia, Getting social, Social events

Christmas and Cards and Coffee and Cookies and Company! Oh My!

Christmas and Cards and Coffee and Cookies and Company – Who Could Ask For Anymore More? Umm, cupcakes?

Holidays got you stressed? Here some ways to relax https://fibrolondongroup.ca/2019/12/15/12-unusual-ways-to-relieve-your-holiday-stress/

And how about stopping for awhile and having some laughs?

How does an afternoon anyway from all the hustle and bustle sound?

No Christmas songs, no busy stores, no gimmicks, no salespeople, no traffic jams, just cards and company.

That’s happening Monday December 23rd, 2019 1pm-3pm.

Are you worried you’re not playing with a full deck from: pain, worry, anxiety, stress, lack of sleep, etc.?

We understand. We get it. Other people say they get it, but they don’t get it. We live it. Just like you. Join us. Be understood.

Whether you’re exhausted, sharp as a tack (ouch!), just want the company, just want to relax or snack, or snack and relax… So whether you’re a card newbie or a card shark

Fibromyalgia London Group (FLG) Games Afternoon, hosted by the joyful and kind Leanne, is for you! Looking for laughs, refreshments, friends and could-be friends? All that and card games too.

You just never known what delights you’re going to be dealt.

Don’t get lost in the shuffle, pop by Monday December 23rd, 1pm-3pm and did I mention it’s free (kindness is free to, spread it around and receive it with joy) for FLG members and their caregivers/supporters, family, friends, etc.? Not Even. Kidding. Free.

But treats, healthy or unhealthy or maybe both, homemade or store-bought or homegrown, all are welcome! Always.

Contact Jacqueline at: Tel: 519-453-3198 ~ Email: fmgroup.london@gmail.com ~ for address and all the deets (ie. 2 hr free parking on the street (and some in the driveway depending on how early you get there), etc. Also, Leanne’s lovely home is near St. Joe’s so there are plenty of bus routes, #15, #6, #90, #13, and many more! Plan your trip http://www.londontransit.ca/plan-a-trip/routes-schedules/ . Also, London now has an income-related bus pass subsidy http://www.london.ca/residents/social-services/discretionary-benefits/Pages/Subsidized-Transit.aspx which can help people with disabilities).

Keep visiting, following and please please please sharing our Website: www.fibrolondongroup.ca – you don’t want to miss a thing.

See you Monday December 23rd 1pm-3pm for cards and relaxation and wishing everyone a safe, happy and healthy (all things considered) holiday season. Merry Christmas and all the best for 2020!!!

Posted in Fibromyalgia, Sharing Circle

Sharing Circle – Cause You’re Worth It

Please join us for Fibromyalgia London Group’s “Bye Bye 2019, Hello 2020!” (“Adieu to 2019 – Bonjour 2020!”) South/West Sharing Circle Session (we’ll share again and again in 2020)!!!

It’s our last sharing circle of 2019 – we’ll be back in January!!! But we know how difficult and stressful the holiday season can be. Christmas shopping, Christmas dinner, Christmas baking, Christmas decorating, Christmas Eve, Christmas Day, Boxing Day, New Year’s Eve, New Year’s Day. So much pressure!!!

There are high expectations during the holiday season even if you don’t celebrate, these are especially tough times for those with chronic illnesses. We get it. We live it. We’re here, in person, via phone, email, text, on social media. We understand. http://fibrolondongroup.ca/2019/12/15/12-unusual-ways-to-relieve-your-holiday-stress/

Sharing is voluntary, caring just happens naturally!

Meet us at: Earl Nichols Recreation Centre 799 Homeview Rd (near Southdale) in London, Ontario, Canada – Thursday December 19th, 2019 11am-12:30pm. Free parking! Near bus routes #10, #93, etc. http://www.londontransit.ca/ to plan your trip and remember, City of London now has a income-related monthly bus passes available http://www.london.ca/residents/social-services/discretionary-benefits/Pages/Subsidized-Transit.aspx#Eligibility). Doesn’t matter how you get there as long as you show up! Peer leaders are there by 10:30am to answer questions, do sign-ups, talk about resources, chat, listen, etc.

Contact Jacqueline at: Tel: 519-453-3198 or Email: fmgroup.london@gmail.com to register but if you forget or don’t remember (gee, none of us with chronic illness ever do that, wait, what was I talking about?) or feel up to stopping by, even for awhile, just drop in, we’re always happy to see you. Come for the sharing, stay for the caring!

Please keep checking here www.fibrolondongroup.ca for blog posts, quotes, poems, event listings, information, resources, etc. Also, “Follow Us” (here and on social media @fmlondongroup) and share posts on: Twitter, Pinterest, Instagram, LinkedIn, MeWe, Facebook, Mix, Reddit, Tumblr, Yum, etc. Leave a comment, get involved, be here for each other.

Fibromyalgia London Group (FLG) is a grassroots, community-based, volunteer-driven, self-help and wellness support group for London, St. Thomas and Middlesex County (and on the internet, the world! Hello world!).

Membership to Fibromyalgia London Group (FLG), also, CFS, ME, and all other chronic pain conditions is only $20/year w/ unlimited access to any or all events, activities, etc. for you and registered caregiver; or a $5 donation per event per person.

Supporting Ourselves By Helping Others.

Happy Holidays! Merry Christmas! ¡Felices Fiestas! Jie Ri Yu Kuai! Laethanta saoire sona! Happy Hanukkah! Joyous Kwanzaa! Yuletide Greetings! Joyeux Noël! Let it snow…somewhere else! Feliz Navidad! Seasons Greetings! Happy New Year Joy! Celebrate! Be merry! Shiawasena kyūjitsu! Boas Festas! Li holide eximnandi! Happy Christmas! Wishing you a latke fun this Hanukkah! Hau’oli Lanui! मेरी क्रिसमस ! Forhe Feiertage! Selamat Hari Raya! Joyeuses Fêtes! Prettige Feestdagen! Buone Feste! Trevlig Helg! Jingle All The Way! Happy Holidays from owl of us! Tis the Season! Warmest greetings! Happy Holidays, Mate! It doesn’t matter how you say it as long as it’s said with kindness.

Posted in Fibromyalgia, Uncategorized

Chronic Suckage

“Chronic Suckage” by Guest Blogger, D. Parker https://yadadarcyyada.com who is also a member of Fibromyalgia London Group and a Peer Leader.

Lazy. Crazy. Whiner. Hypochondriac. Attention-seeking. All in your head.   “Fibromyalgia is just another word for lazy.” yadadarcyyada.com/2013/08/31/fibromylagia-is-just-another-word-for-lazy/ 

And the classic, “But you don’t look sick”. Feel free to add more. I think I’ve heard them all…but you never know.

Yup, I got 99 Problems and Fibromyalgia (Fibromialgia) is all of them…or at least it makes any problem much much much much worse.

I won’t bore you with all the symptoms:

  • Extreme, endless fatigue (I’ve never heard, “everyone gets tired”…sigh).

  • Extreme, endless all-over-body-pain 24/7/365 (“everyone has pain, especially as they get older” – how do you presume to know my pain or anyone else’s pain but yours?).

  • Dry eyes/mouth.

  • Hair loss.

  • IBS (Oh joy, love nothing more than talking about my bowels to: doctors, family, friends, strangers, interns, readers…”What did you want to be when you grow up?” “Constipated.”).

  • Dizziness.

  • Clumsiness.

  • Nausea.

  • Depression (tough not to be depressed by all this).

  • Sleep issues (screw off Alpha waves, no one wants you here).

  • Mood disorders (maybe my many, many moods are just as ordered as they should be).

  • Headaches/migraines.

  • Restless leg syndrome.

  • Anxiety (pick a kind, any kind).

  • Tender points (misnomer, not tender, excruciating, but trigger points make sense).

  • Fibrofog (what was I saying?).

  • Memory and learning problems, like, aah, like, well, there’s Fibrofog (what was I saying?).

  • Scattered thoughts (dust in the wind, all my thoughts are dust in the wind).

  • Numbness.

  • Tingling (not the good kind).

  • Shakiness (not the good kind).

  • TMJ (Temporomandibular Joint Syndrome).

  • Painful and frequent urination.

  • You may notice a pattern here, #Pain!

  • Sharp pain, stabbing pain, dull aching pain, burning pain, throbbing pain (Beavis and Butthead laugh for 5 minutes now about “throbbing”).

  • Extreme sensitivity to: light, noise, sounds, smells, temperatures, humidity, dryness, changes in the weather (especially extreme heat or cold, fun in Canada, eh).

  • Also, to tastes, textures (Princess and the Pea was written about someone with Fibromyalia, for sure).

  • Stiffness (not the fun kind).;

  • Especially morning stiffness (not the fun kind).

  • Let’s not forget Allodynia.

  • Itching (like, bugs-under-your-skin-when-jonesing-kind-of-itching, er, for chocolate, my drug of choice).

  • Waking up feeling like you’ve been run over by a truck or attacked by a Terminator or zombie (brains?) – We are The Walking Dead.

  • And don’t even get me started on surviving the Holidaze, er, holidays – Christmas, New Year’s Eve, birthdays, Easter, Thanksgiving, Black Friday (it’s counted as a holiday now, right?), actually I can do CyberMonday, and they’re lined up to take me out for Valentine’s Day

I could go on and on (really), but you get the point.

It sucks.

Chronic suckage.

What can anyone do to try to help chronic suckage? 
  • Pills/medications (anti this, anti that, pro this, pro that, SSRIs, SNRIs, NSAIDs, PB&J – checking if you were still paying attention, lotions, notions, rubs, gels – not the fun kind – vitamins, supplements, opioids, snake oil, gargoyle oil, and on and on).

  • Exercise.

  • Natural remedies.

  • Injections.

  • Yoga.

  • Meditation.

  • Deep breathing (keep breathing).

  • Tai Chi (saved my life).

  • Change of diet (I do FODMAP, look it up, you’ll hate it).

  • Massage (no happy endings).

  • Physical therapy.

  • Rest/relaxation/Self-Care.

  • CBT, CBD, CBC, CBA, COD…

  • Trials.

  • Errors.

It’s all just fleeting moments of feeling almost human.

And if all wasn’t bad enough, many people assume this invisible disability is and let’s see if I have this right, a conspiracy wherein the medical profession has effectively implemented a fake syndrome just to cater to lazy people (wasn’t that nice of them?). Perfectly reasonable, it’s not as if doctors have anything better to do. Or have reputations and licenses to protect. Or have ethics. What exactly would their motivation be? Why make up an illness, aren’t there already enough? Cancer alone should keep them hopping.

There are many health issues that can not be found through standardized testing, for example: Multiple Sclerosis, ALS, Cerebral Palsy, Parkinson’s, Autism, Lupus, ADD/ADHD, wheat or gluten ‘sensitivity’, acute back pain, as well as many mental health issues. So they don’t suffer, don’t feel – it’s all some magical conspiracy…

People like to mock. I get that. It’s become a past-time, even a job for some people, especially in the internet age. I also get those same people would want/expect doctors and people to believe them if they were ill, even if there was no standardized testing for their illness.

To the best of my knowledge, there’s no standardized testing for ignorance or stupidity yet either, but I’d buy stocks for that booming business.

I didn’t ask to be ill. Given the choice I’d be “normal”. I certainly didn’t ask to be mocked and harassed because I’m ill. Even if it was just ‘in my head’, shouldn’t anyone with a health issue be treated with dignity and respect? Maybe we need a standardized test for intolerance.

So how do I cope with ongoing agonizing pain, debilitating fatigue and all the other heaping piles of steaming sh*t that comes with Fibromyalgia aka chronic suckage? If you’re a reader of my blog you know, I think laughter is the best medicine. Laughing even if it hurts sometimes still makes me feel better. I go to a happy place like Psych or George Carlin, Seinfeld, Friends, The Office and more. Tons of laughter a day doesn’t keep the doctor away, but it gives me some quality of life.

For example, this was one of my Tweets, “When I see a thong in a store all I think is, how would I explain to #EMTs all my multiple injuries were caused by just trying on a thong. Huh. #ThatsHot #thongs“. @yadadarcyyada 

I love to share the laughter. If I can make someone smile, laugh, giggle, chortle, spew liquid from their nose, then hey, I feel better. Treatments, medications, family, friends and finding a community that gets you, that understands when you have to cancel plans (again)…

Or you can’t remember, ummm, can’t remember, er, huh…and the only good thing you can say about your day is you’re “above ground”, well, anyway.

Glad there are people around who understand, including but not limited to: the-words-are-not-enough-to-describe-how-wonderful-they-are-Fibromyalgia London Group (FLG) #FibromyalgiaLondonGroup #FLG, also for those with CFS, ME, chronic pain, etc. I’ve even tried to knit (What?!? Please note the word, “tried”).

Reunited with a fantastic friend from college (we’d lost touch when the dinosaurs died), and get this, we started going to the same Fibro group on the same day, from different cities. I don’t know what they call that, fate, destiny, providence, kismet, but I call it cool and lucky.

Finding ways to help myself by helping others.

I am so sure you can see my chocolate-covered fingerprints all over the group’s blog, fibrolondongroup.ca

And hey, we’re also on Twitter, Facebook, Instagram @fmlondongroup

The thing is, people are just people – no matter how rich or poor; sick (this is an equal opportunity destroyer) or well; all sizes, shapes and shades; known or unknown – you don’t know what you’re missing if you don’t give people a chance. Some will let you down, disappoint, hurt your brain, your heart, your body, but they’re oddly beneficial, they help us appreciate the good ones even more.

Get out there, in person, online, by phone, text, email, do stuff, I don’t know, play cards, smile, knit, donate (give what you can, including your time and talents), bowl, cuddle, talk, sign, sing, walk, dance, embrace your crapathy https://yadadarcyyada.com/2016/05/25/crapathy/

swim, skate, scuba (gate?), especially smile at children, jog, blog, snog (probably not at the same time unless you’re uber talented), ignore, don’t keep score it’s a bore, read, write, compose, doodle, paint, play, bike, hike, “Like”, bake (me a cake? https://yadadarcyyada.com/2016/09/16/you-had-me-at-cake/),

listen, learn, love, add to the world, be part of the solution, go out with friends, care, share, spend time with family, get to know people, smile some more (and more and more and more)!!!

Be kind, be thoughtful, be compassionate https://yadadarcyyada.com/2015/02/20/compassion-never-goes-out-of-style/

Consider others, let your mind soar. I can’t say you won’t ever be sorry, some folks are baffling, but on a whole, you’ll be better for it (and they will be too).

Not asking anyone to feel sorry for me (although compassion and empathy are always welcome), just a reminder that everyone has problems, 99 or less, 99 or more, just because we can’t see them doesn’t mean they aren’t there…so don’t be one of those problems.

Originally published: https://yadadarcyyada.com/2019/11/22/99-problems-and-fibromyalgia-is-all-of-them/

Copyright D. Parker (aka Donna Parker/yadadarcyyada) 2019.